VRM Development Work
- 1 SOFTWARE and SERVICES
- 1.1 Privacy Protection
- 1.2 Intentcasting
- 1.3 Personal Information Management Systems (PIMS)
- 1.4 Markets for personal data
- 1.5 Databases
- 1.6 Messaging
- 1.7 Online Dispute Resolution (ODR)
- 2 SERVICE PROVIDERS OR PROJECTS BUILT ON VRM PRINCIPLES
- 3 INFRASTRUCTURE
- 4 PEOPLE
- 5 CONSORTIA, ORGANIZATIONS, WORKGROUPS
- 6 MEETUPS, CONFERENCES AND EVENTS
- 7 NOTES
SOFTWARE and SERVICES
Better "a tracker blocker by Ind.ie for iPhone, iPad & Mac. It protects you from behavioural advertising/web malware by enforcing principles of Ethical Design"
Bouncer "Control all tracking, not just by "third-parties", or by those on pre-selected lists."
Disconnect † "Take back your privacy. Free yourself from unwanted tracking. Enjoy a faster, safer internet."
Ghostery † "Get complete control of your browsing. For a cleaner, faster, safer online experience."
Global Consent Manager "Amplifying the relationship between your privacy and reputable news and information sources"
Lightbeam "See who’s tracking you online"
NoScript A "unique whitelist based pre-emptive script blocking approach prevents exploitation of security vulnerabilities (known and even not known yet!) with no loss of functionality."
Privacyfix † "One dashboard for your Facebook®, LinkedIn®, and Google® privacy. Blocks over 1200 trackers."
Privacy Badger "blocks spying ads and invisible trackers"
RedMorph † "Visualize & Block Trackers, Cookies, and 3rd Party Content + Encrypt Your Data + Filter & Block Inappropriate Content"
uBlock "Content. Not clutter. Your web experience has never been this fast and efficient. Fast, memory-efficient, lightweight. No ads, sneaky tracking or overhead."
Ad Blocking (some of these also include tracking protection)
Adblock † "Block ads, browse faster."
AdBlock Plus † "Surf the Web without annoying ads."
Adguard † "the best way to get rid of annoying ads, online tracking and to protect your computer from malware."
Optimal † "We’ve built an ad blocker that works across multiple desktop and mobile browsers (including inside apps), and lets you support content creators through a (voluntary) subscription!"
Other privacy approaches
Abine Blur † "helps you remain anonymous, keeps your accounts organized and lets you decide who gets your private information, and who doesn't."
Abine DeleteMe † "removes you and your family's public profiles from Leading Data Broker Sites , which includes names, current and former phone numbers, email addresses, current and former physical addresses, and photos of your home.
Beaker "Beaker is a peer-to-peer browser with tools to create and host websites. Don't just browse the Web, build it."
Brave † "The new Brave browser automatically blocks ads and trackers, making it faster and safer than your current browser."
Frozen Pii † "Dedicated to helping people reclaim and protect their identity from criminals and corporations who exploit the identity of people.
GnuPG "encrypt and sign your data and communication
heartbeat "Messages stay on your device and on your friends’ devices. In transit, they’re protected by the same technology that protects your bank’s web site."
Lumen Privacy Monitor -an Android app that "runs on the mobile phone itself and can comprehensively observe app, device and network activity. This will allow ICSI researchers to understand the operation, performance and personal information flow---including online third-party services collecting this information---at unprecedented scales with real user stimuli." Developed by ICSI, listed below
Heart "The HEART Working Group intends to harmonize and develop a set of privacy and security specifications that enable an individual to control the authorization of access to RESTful health-related data sharing APIs..."
Jumbo † "One app for all your privacy needs. One simple and efficient way to make privacy approachable is to design a universal interface to manage all your privacy needs in one place. With Jumbo for iPhone, you can manage your privacy on: Facebook, Google Search. Twitter. Alexa. Coming soon: Instagram, Tinder. We are adding new apps supported every week."
Open Whisper Systems - "Open Source security for mobile devices."
PrivacyMonitor † "We read the fine print, so you don't have to."
Privowny † - "Your personal data coach. Protect your identity/privacy. Track what the Internet knows about you."
ProxiMe Geofencing private health data in treatment contexts (e.g. Ebola)
Silent Circle † "Mobile Privacy Solutions for Individuals and Enterprise"
Tenta browser † "Your private encrypted browser, with Incognito¡™ and OpenVPN®." Android only (as of 6 August 2017)
Wickr † "an iPhone encryption app any 3-year-old can use" and "secure communications that Leave No Trace"
Stands † "a Fair AdBlock that blocks ads, popups, malware, and trackers."
SUPERantiSpyWare † "Remove spyware, NOT just the easy ones."
Tails "a live system that aims to preserve your privacy and anonymity. It helps you to use the Internet anonymously and circumvent censorship almost anywhere you go and on any computer but leaving no trace unless you ask it to explicitly."
Tonido "Access your files from anywhere. Share large files and folders with family, friends and colleagues. Setup public direct links so anyone can access the content or create a secure private share that only authorized people are allowed to access them."
Princeton WebTAP: The Princeton Web Transparency & Accountability Project, at the Center for Information Technology Policy at Princeton University. "We monitor websites and services to find out what user data companies collect, how they collect it, and what they do with it. With our measurement platform, we study privacy, security, and ethics of consumer data usage."
About2Buy † "A Collaborative Commerce System to Align Internet Buyers & Sellers Via Multiple Channels of Social Distribution."
BroadHunt † "Whatever you're buying, let industry insiders compete to get you the best deal."
Craigslist † "Local classifieds and forums - community moderated, and largely free."
Crowdspending † "... gives each of us the power of all of us."
GetHuman † "Need to contact a company? Or have them call you? Get customer service faster and easier."
Greentoe † "Finally...There’s a New Way to Shop! Name Your Price & We Negotiate For You."
HireRush † "Connecting people who are looking for work and locals who need to hire trusted professionals."
HomeAdvisor † "We help you find trusted home improvement pros."
Indie Dash Button † "This ... turns traditional advertising on its head, and removes the need for complicated targeting technology. Customers readily identify themselves, creating more valuable sales channels where guesswork is all but eliminated."
iNeed † "Your own personal assistant."
Intently † "Request any service anywhere with Intently.co."
Instacart † "The best way to shop for groceries — Delivered from the stores you love in one hour"
Magic † "Text this phone number to get whatever you want on demand with no hassle..."
Mesh † "Connect with only the things you love... See ads from brands that matter to you. And block the ones that don't."
MyTime † "Book appointments for anything."
MyWave † "'Myia' puts the customer in control of "getting personalised experiences anytime, anywhere, on any device."
Nifti † - Intentcasting "puts" in the market at customer (or community-) -chosen prices
Operator † "Operator is an iPhone app that connects you to experts to help find you what you want, when you want."
Pikaba † "Pikaba is Social Shopping Platform that captures consumer intent to purchase and connects them with the right local business."
PricePatrol † "monitors nearby stores for what you want at the price you want"
RedBeacon † "Trusted pros for a better home."
TaskRabbit † "Tell us what you need, let us know what we can take off your plate, choose a Tasker, hire one of our fully vetted Taskers to get the job done."
Thumbtack † "We help you hire experienced professionals at a price that's right."
TrackIf † "Track your favorite sites for sales, new items, back-in-stock, and more."
WebOfNeeds - "A distributed marketplace driven by customer needs."
yellCast † "What you want, where you want it."
 † "Our purpose: To connect people with great local businesses."
Zaarly † "Hire local, hand-picked home services. We moderate every job and guarantee happiness at virtually any cost."
Personal Information Management Systems (PIMS)
Arkkeo † Relaunched in 2018. Now, "links to your customers' payment cards and automatically rewards them for making frequent purchases." Formerly, "automatically stores and archives all the purchase receipts, warranty, insurance, healthcare and travel documents you receive from the businesses and service providers that you deal with."
Camilstore Personal storage system. "Note that it's a 'storage system', not just a 'file system'."
CozyCloud † - "a Personal Cloud you can host, customize and fully control"
dappre † "Allow people and organisations to subscribe to you and share the data you want to share"
Dashlane † - "The world's best password manager & secure digital wallet.
Digitteria † - "...puts people at the heart of managing their data usage. Digitteria’s products allow people to protect and share their information with third parties on their own terms."
Digi.me † "Take control of the data powering your digital life."
Domain of One's Own - An open source project at Mary Washington University so "users will have the opportunity and flexibility to design and create spaces of almost unlimited possibilities. Within the system, they may install LAMP-compatible Web applications, set up subdomains and email addresses, and install databases." And much else.
Enigma "...a decentralized cloud platform with guaranteed privacy. Personal data is stored, shared and analyzed without ever being fully revealed to any party."
ForgeRock † "Builds secure relationships across the modern Web including cloud, social, mobile, and enterprise environments"
Geddup.com † - personal data and relationship management
Glome † "Anonymously control Web's offerings and get paid for interacting with businesses"
Helm † "the personal server that lives where you do"
HIE of One "a patient-centered health record based on the FHIR and HEART interoperability standards"
Hushmail † "a private email account with no ads, first class technical support and unlimited email aliases"
InformationAnswers † "Where CRM meets VRM...a consulting and development business centred on the emerging personal data ecosystem"
LastPass † - a secure password vault and service
Lavaboom † "free secure email for everybody"
Lifescope † - "The internet of you." "Lifescope is an open platform for personal data whereby ownership is returned to the user."
Meeco † "...an easy way to manage your digital life and control your information, so you can decide who you want to share it with and be rewarded for being you!"
MyDigipass † Secure login. "The ultimate password app"
Mydex †- "enables individuals to exchange personal data with confidence."
OneCub †- Le compte unique pour vos inscriptions en ligne (single account for online registration)
Oneexus † - "Always personal, private and safe. Keep your data with Onexus Cloud."
OpenPath † - "a secure data locker for personal location information."
OwnCloud - "Access your data from all your devices, on an open platform you can extend and modify."
OwnYourInfo † "Your Personal Data Vault."
Paoga † - "a technology platform that provides individuals and organisations with a secure repository to enter your personal information and data"
percloud - "A free software, portable, personal alternative to centralized email, social networking and other Web services."
Pikcio † "With Pikcio, you are now able to take control over your digital life. Communicate with confidence with people you trust and retrieve your various data in a single and secure application."
Pillar † "return control over personal data back to its rightful owner - you. Starting with an open-source wallet to store, transact, and track cryptocurrencies and tokens, the Pillar Wallet will evolve into a decentralised, personal data-management platform."
Pribook † Re-launching soon. Was "a personal cloud network for "personal identity, vendor relationship management and personal network of things."
QIY "Dedicated to put people back in control of their personal data while creating value for organisations."
Sandstorm - "an open source platform for personal servers."
Solid - "a proposed set of conventions and tools for building decentralized social applications based on Linked Data principles. Solid is modular and extensible and it relies as much as possible on existing W3C standards and protocols."
Trov † "On-demand insurance for the things you love."
Markets for personal data
360 of me † "The trusted personal data exchange platform that allows you to securely share, learn and earn"
Bitclave † "Our Vision... Create and Grow a Blockchain-Based Decentralized Marketplace to Benefit All Participants...allows businesses and ecosystem partners to effectively target potential customers and allow end users to receive better matched offers. When users get rewarded for sharing their personal data, businesses and service providers can achieve greater customer acquisition and retention rates."
Datacoup † "Unlock the Value of Your Personal Data: Introducing the world's first personal data marketplace."
Datawallet † "Datawallet is your digital wallet for your online data. It allows you to take your data from platforms such as Facebook, Amazon, Uber, Spotify and unify it in one place. You control who gets access to your data, learn what your data says about you, and get paid when you share your data."
Datum "Blockchain Data Storage and Monetization... designed for innovators who empower individuals."
Hub of All Things (HAT) "a best in class solution in the emerging personal data exchange market." And, "Own your own personal data."
Hu-manity.co † "We can now participate in the human data marketplace where our inherent human data has the legal characteristics of property ownership such as involvement in sale, fair market value negotiations, sharing, lien, and security." See also [hu-manity.org Hu-manity.org] "Championing choice and continuous consent" and "We seek to embrace a Triple Bottom Line regarding data, specifically transactions that benefit us, our local communities, and the world as a whole." Also #My31, "The app that starts the movement to claim our data as our property."
metaMe † "Your data is yours to own, use and monetise however you choose. We empower you to gain full control of your digital self, so you’re free to explore how your data can enrich your life."
PDATA Token † "Secure trading of personal data...We build a decentralized platform where you can earn money with your data"
People.io † "connect with the value of your data"
PIKCiO † "...a complete infrastructure dedicated to personal data collection, certification & transfer...a unique business model around data valuation & sharing..enhances the trust with a new smart data valuation tool...which will help business and individuals to manage risk and reputation."
Streamr "...an open source platform for the free and fair exchange of the world’s real-time data. Our blockchain-backed data Marketplace and powerful tools put your data back where it belongs – with you."
Sygnet † "Own Your Digital Self: Sygnet is a next-generation identity management tool for truly secure handling of user’s sensitive, personal data."
The Data Union "Advocating for a market economy that acknowledges and indemnifies people for the valuable labor that is contributed by their data."
InfoGrid - graph database for personal networking applications
ProjectDanube - open source software for identity and personal data services
Confide † - "Messages disappear after they're read, ensuring all of your communication remains private, confidential and always off the record."
Directly † - customer service Q&A site connecting to people who have worked in big companies and are willing to help when the company can’t or won't
Hoccer † "The secure messenger for fast easy datasharing available for iOS and Android"
OTR Off-the-Record Messaging "allows you to have private conversations over instant messaging"
Signal † - "Privacy that fits in your pocket"
Online Dispute Resolution (ODR)
Modria † "Fast and fair resolution for commerce."
Youstice † "We help customers and retailers resolve shopping issues quickly and effectively"
SERVICE PROVIDERS OR PROJECTS BUILT ON VRM PRINCIPLES
4th Party † "C2B platform for trusted brands"
A•kin † - "...building AI able to autonomously solve complex problems, and form deep and trusted relationships with humans. This is a new approach to General Artificial Intelligence." Also, "A•kin's mission is to bring about the ethical co-evolution of humans and AI."
Allfiled † "The Trust Platform behind businesses who put their customers first"
belmewel-register.nl — the "Dutch YouMayCallMe registry" † "reverses the customer paradigm"
Casius † "Matching home owners with pre-screened & qualified local contractors"
citizenme † "(Our) mission is to bring people and companies together to share information for mutual benefit"
Ethos "a growing network of social entrepreneurs and innovators who create sustainable solutions to society’s complex challenges... founded in 2010 by Robert Pye and Tony Clarke who had a vision of the future of work: better for individuals, better for organisations, better for the world we live in."
Fair Data Society "a non-profit initiative that is �reimagining the data economy and creating a fair �and decentralised data layer. Fair Data Society recognises online privacy as a �basic human right and a basis for progress for all."
FileThis † "Take the paper and the work out of paperwork... Think outside your inbox."
Flamingo † Service company working toward leveling the playing field between service providers and customers
First Retail Inc. † working to change ecommerce
Fundchan † "Funded channel messaging"
HelloPeter † "Report on the service you receive from any supplier - anywhere, and tell the world. Quickly and for free."
Helpshift † "An in-app customer support platform that enables mobile apps to improve customer experience"
Real Estate Cafe † money-saving services for DIY homebuyers & FSBOs
Hover.com Customer-driven domain management†
Hypothes.is - open source, peer review
iHealthHome † "A comprehensive in-home monitoring and communication system designed for professional caregivers...enables client self-management to improve health and reduce total cost of care"
Hubscriber † "Manage any email-connected account, for thousands of companies (subscriptions, utilities, retailers...really, any company that has your email address) in a single, organized app. We call it a PRM, which stands for "provider relationship management." It is like a CRM (which helps companies manage customer relationships) but for customers to manage provider relationships".
inrupt † "to reset the balance of power on the web and reignite its true potential."
JLINC Labs † "the 1st truly interoperable and fully extensible enterprise platform for personal data rights management, JLINC fundamentally changes the nature of how personal data is exchanged on the Internet."
Mainframe.com † - "The convenient platform for secure decentralized applications."
Maidsafe † "(Massive Array of Internet Disks - Secure Access For Everyone) is an open-source program (hosted on GitHub) that enables a decentralized internet platform.."
mediagoblin - "a free software media publishing platform that anyone can run. You can think of it as a decentralized alternative to Flickr, YouTube, SoundCloud, etc."
Monax (Formerly Eris) † a platform "designed to support multiple blockchain clients connected to multiple blockchain networks with different smart contract interpreters all seamlessly connected to other microservices necessary to build, test, and run the ecosystem application such as key management systems and distributed data lakes."
MyWave † "MyWave CMR puts the customer in charge of their data and the experience."
NewGov.us - GRM, Government Relationship Management
Open Consent † "Do a better job at telling the world why you are good at privacy with open market tools to broadcasting privacy & security for people."
Orchid † " We're building a new civil contract around a distributed marketplace for computation, storage, and bandwidth to provide the framework for a new form of digital citizenship."
Ourdata † "By coming together as a large consumer data union, we can get back our fair share of the billions of dollars being collected from selling and using our data. In addition, we can help publishers regain a large chunk of lost revenues from simple ad blocking."
Personal Blackbox † "We are a Platform as a Service company providing App Developers a vehicle to give users transparency and control of their personal data. Designed with GDPR at its core, the platform treats data with respect — mindful of permission, protection, and usage.."
PeerCraft † "A personal agent offering a set of commerce tools to its individual private users. The main purpose for Peercraft is to support Vendor Relation Management - the new trade paradigm allowing consumers to express their intentions and manage their purchases on their own terms."
Powr Of You † "Map your digital life & learn about yourself. Get rewarded and unlock the power of your data."
Reputation.com † - Service for controlling one's reputation online
Resolver - "Helps you solve issues against over 1,500 key services for free"
Ride Austin - "a community driven nonprofit ridesharing company" in Austin, Texas
Shopsio † "It's the new way of shopping. All shops. One app." Launching in 2018.
SingleiD † A phone app. From the About page, "What all online users get with SingleID is empowerment: to be in control of their online identity and not to be forced down the endless corridors of registrations and identifications."
Sovrin Foundation - "a public service utility enabling self-sovereign identity on the internet."
StopDataMiningMe "the central source for consumers to learn what kinds of information data brokers have about them and how to exercise their opt-out choices. The mission of StopDataMining.me is to serve as the “Do Not Call” list for data broker companies."
Banyan Project- community news co-ops owned by reader/members
TheGoodData † "Helps you control your personal data and make it work for a good cause"
The Hi: Project "EMPOWERING YOU, EMPOWERING US ALL, WITH A MORE HUMAN WEB."
TiddlyWiki - a reusable non-linear personal Web notebook
Ting † - customer-driven mobile virtual network operator (MVNO - a cell phone company)
Tucows † Parent of Ting and Hover
uPort - "uPort returns ownership of identity to the individual. uPort's open identity system allows users to register their own identity on Ethereum, send and request credentials, sign transactions, and securely manage keys & data."
Urqui † "now control your own security and function in the virtual world with greater confidence."
VirtualZero - Open food platform, supply chain transparency
WeMakeItSafer † - "Items I Own sends alert
Welcomer † "a better way of connecting data across database silos."
YouID † "a simple — but powerful — system for generating, managing, and controlling Web- and Internet-scale verifiable identity that's totally controlled by you. It makes you the master curator of your profile data and associated content indexes, without compromising your privacy."
ChoiceSpace "an intangible tool for decision making that uses interactive visualization to facilitate collaborative deliberation and social knowledge production"
EmanciPay - dev project for customer-driven payment choices
GRM: Government Relationship Management - subcategory of VRM
ListenLog - personal data logging
R-button - UI elements for relationship members
BlackPhone † "a secure starting point for your personal and proprietary communications. It combines a fortified Android operating system with a suite of apps designed to provide you with absolute privacy."
Databox "a technical platform enabling people to engage with the collection, management and consumption of personal data... personal, under the direct control of the individual whose data it holds." Also see
Freedom Box - personal server on free software and hardware
Indie Box - run open-source web applications on personal server in your home
Personal Server - "Life is better when you have your own server and are in control of your digital life"
Protonet † - "we’ve built the hardware and software to eliminate the need for cloud services and for IT expertise."
Purism † - "the most ambitious hardware+software liberation effort ever undertaken, with a strong focus on security."
Scanadu † - A scanner packed with sensors designed to read your vital signs and send them wirelessly to your smartphone
Standards, Frameworks, Code bases and Protocols
arkOS A personal cloud operating system.
Datafund "Datafund protocol guards personal data, provides safe storage and enables ethical data exchange. Individuals create their own datafund to reclaim, own and manage their data."
Etherium - " a decentralized platform that runs smart contracts."
FinTP - "the first open source application for financial transactions"
Evented APIs - new standard for live web interactivity
GoodRelations - "The Web vocabulary for e-commerce"
Jolocom - "Universal Identity Protocol — An open source protocol for people and smart agents to autonomously create and interact with digital, self-sovereign identities.
Oneswarm - privacy protecting peer-to-peer data sharing
JLINC protocol "provides signed agreements about how digital content can be shared on the internet, establishing data provenance: a chain of custody for data."
InfoGrid RESTful Web Graph database
http://www.mozilla.org/en-US/persona/ Mozilla Persona] - a privacy-protecting one-click email-based way to do single sign on at websites
Owncloud "provides universal access to your files via the web, your computer or your mobile devices — wherever you are."
PeerStorage "The TCP/IP protocol was designed so that all connected devices could be both client and servers."
Pico Labs - "c...reates Internet of Things technology that preserves personal freedom. Pico Labs is responsible for Picos, an actor-based programming system that supports people-centric, reactive programming on the Internet of Things."
Qredo † "...easy to use cross-platform APIs provide the building blocks to help you create applications that keep your user’s data and their communications private."
Sovrin Foundation † - "Permanent Digital Identities that Don’t Require a Central Authority"
Solid "Solid (derived from 'social linked data') is a proposed set of conventions and tools for building decentralized social applications based on Linked Data principles. Solid is modular and extensible and it relies as much as possible on existing W3C standards and protocols." Tutorial on Github.
Tahrir — "aims to be a distributed, decentralized, scalable, and anonymous "workalike" for services like Twitter, Google Plus, and Facebook"
TAS3.eu — Trusted Architecture for Securely Shared Services - R&D toward a trusted architecture and set of adaptive security services for individuals
Telehash - standards, personal data protocols
Tent - open decentralized protocol for personal autonomy and social networking
The Mine! Project - personal data, personal agent
UMA - standards
webfinger - personal Web discovery, finger over HTTP
XDI - OASIS semantic data interchange standard
UBOS - "a new Linux distro that aims to make it 10x easier to run server-side apps for yourself, or for your family, on hardware you own."
Analysts, Research Organizations, Investors and Consultants
Ctrl-SHIFT † - analysts, consultants, conference holders
Matter.vc † "looking for early-stage media ventures that are changing media for good." Specifically, investments director Ben Werdmuller (@benwerd) is looking for VRM/CustomerTech startups to support.
PureProfile † "Connects you with a range of paid surveys, cool insights and content matched to you"
Synergetics † - VRM for job markets
The REXpedition † "The relationship economy expedition"
HealthURL - "Helps for-profit and not-for-profit organizations navigate rapid change in medical device and health information technology to bring simple and fully connected products and services to market."
CONSORTIA, ORGANIZATIONS, WORKGROUPS
IDESG, the Identity Ecosystem Steering Group. "...the only independent body dedicated to redefining how people and organizations identify themselves online, by fostering the creation of privacy-enhancing trusted digital identities."
Customer Commons - "for liberated, powerful and respected customers," "how customers deal with good companies" and "how free customers are more valuable than captive ones."
Data Privacy Lab "a program in the Institute for Quantitative Social Science (IQSS) at Harvard University... to provide intellectual leadership to society in shaping the evolving relationship between technology and the legal right to or public expectation of privacy in the collection and sharing of data."
Detroit Community Technology Project "DCTP’s mission is to use and develop technology rooted in community needs that strengthens human connections to each other and the planet."
Digital Equity Lab "The Digital Equity Laboratory uncovers and addresses structural inequities that persist and evolve as technology transforms our cultural, social, and political systems."
DIF—Decentralized Identity Foundation - Identity Foundation: "building an open source decentralized identity ecosystem for people, organizations, apps, and devices...decentralized identities anchored by blockchain IDs linked to zero-trust datastores that are universally discoverable."
Fing.org - VRM fostering organization in France
GLIAnet "GLIAnet would create a more decentralized ecosystem of digital trust...he GLIAnet concept is premised on Users voluntarily granting to trustworthy entities access to portions of their past practices, present actions, and future intentionalities—their data Lifestreams."
The H(app)athon Project "Connecting Happiness to Action"
The International Computer Science Institute (ICSI) † "a leading independent, nonprofit center for research in computer science" and developer of the Lumen Privacy Monitor, listed above.
Consent & Information Sharing Workgroup at Kantara - legal agreements, trust frameworks
MIDATA.coop "a secure open source IT platform controlled by not-for-profit cooperatives that empower its members to store and control access to their personal data."
Midata Innovation Lab "Working to give consumers better access to the personal data that companies hold about them. @ Department for Business, Innovation & Skills (BIS)."
Midata "Providing better information and protection for consumers. Organisation: Department for Business, Innovation & Skills"
Our Data Bodies "We are a five-person team concerned about the ways our communities’ digital information is collected, stored, and shared by government and corporations. Based in marginalized neighborhoods in Charlotte, North Carolina, Detroit, Michigan, and Los Angeles, California, we look at digital data collection and our human rights, work with local communities, community organizations, and social support networks, and show how different data systems impact re-entry, fair housing, public assistance, and community development."
Patient Privacy Rights - Patient privacy advocacy organization
People Centered Internet - " an international coalition of positive #ChangeAgents created to ensure that the Internet continues to improve people’s lives and livelihoods and that the Internet is a positive force for good with helping people achieve their goals and aspirations."
Personal Data Ecosystem Consortium (PDEC) - industry collaborative
That One Privacy Site - "... a resource to those who value their privacy, specifically those looking for information on VPNs (that isn’t disguised advertising)"
The Gov Lab - "The Governance Lab (the GovLab) brings together thinkers and doers who design, implement, and study technology enabled solutions that advance a collaborative, networked approach to reinvent institutions of governance."
MEETUPS, CONFERENCES AND EVENTS
IIW: Internet Identity Workshop - Twice-yearly unconference in Mountain View.
† Indicates companies. Others are organizations, development projects or both. Some development projects are affiliated with companies.
A - creating standard
B - Using other standards
1 - EventedAPI