Difference between revisions of "2010 03 25 Steering Committee call notes"

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(added a link to info sharing workshop)
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Judi mentioned the new NIHN wiki is beginning to deal with VRM issues around medical records and the indvidual as a participant in the movement of medical information about the patients. She encouraged anyone interested to join.
 
Judi mentioned the new NIHN wiki is beginning to deal with VRM issues around medical records and the indvidual as a participant in the movement of medical information about the patients. She encouraged anyone interested to join.
 
Mike Kirkwood and Adrian Gropper have long championed individuals taking more control of access to their medical records.  
 
Mike Kirkwood and Adrian Gropper have long championed individuals taking more control of access to their medical records.  
Connection at [http://nhindirect.org/]
+
Connection to NHIN Direct here: [http://nhindirect.org/]
Listem log into public radio player
 
in the cloud; prototype only
 
  
Emanicpay work is under way (Doc)
+
Doc reported that the VRM Project "Listen log" is being put into a public radio player. This is a prototype only.
 +
Doc reported further work on Emancipay.
  
Rene origianl thinig of user gernerated or user located forms of expressing intention, not nec. contractiual....
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Doc is working with lawyer and VRooMer, Renee Lloyd who he reported is applying great original thinking to user gernerated or user located forms for expressing intent. The methods they are working on should make it easier for users to wield a greater level of control, and for companies to simplify their terms of service.
  
make it easier for companies NOT to do ToS
+
Doc reported that Craig Burton and Kynetx are working on a new data concept where parts of your virtual artifacts -- your digital wallet, etc. are personalized and held by you, even though the data is in a trusted cloud managed by another entity.
  
Rene and Craig Burton  are now connected
+
Kaliya is gearing up IIW. ProjectVRM will hold a workshop the Sunday before starting at 8:30 AM. Judi Clark is working on locating a space.
  
what is mine: wallet, glasses, etc. even tho the data is in a trusted cloud somewhere.
+
Doc reported that a new conference occurred in Washington DC, called "Map the Gap". It is dedicated to having techologists and lawyers engage in dialog, since there is a significant difference in implementation speeds between where tech is and where the laws affecting the societal effects are, hence, the 'gap.
 
 
your pie in the sky
 
 
 
encompass info sharing, policies, preferences.
 
 
 
kaliya was at doc's house all weekend
 
 
 
Many efforts are unconnected:
 
* Craig, kynetx
 
* paul, azigo
 
* joe, iain, judi, infor sharing
 
* mike, adrian, health info
 
there are VRM aspects to all these things
 
looking at IIW as the unifying next juncture;
 
Need to loop the efforts together
 
 
 
Day before IIW, Information Sharing Scenarios Development workshop [http://infosharing.eventbrite.com/] on Sunday, 8:30 AM
 
 
 
Rene working with Joyce, Doc --> what is VRM when it spins off from Berkman -- another school year needed to retain affiliation.
 
 
 
Rene working on a doc right now;  map the gap conference in DC, ID Legal -- tech and legal move at different rates. the difference is the gap.
 
Dialog at "Map the Gap" conference in D.C. 
 
NIH: "individual is zero, no matter how many zeros you have, it's still zero."
 
 
 
Look at legal model on the buy and sell side; need to think creatively on the
 
Info sharing group - Joe A
 

Revision as of 19:04, 24 March 2010

Notes from Project VRM Meeting March 25, 2010 1 - 2 PM EDT

Present: - Doc - Dean - Sean - Iain - Charles - Judi

Dean remarked that tone, quantity, and quality of discussion on the project VRM list is at an all time high

Judi mentioned the new NIHN wiki is beginning to deal with VRM issues around medical records and the indvidual as a participant in the movement of medical information about the patients. She encouraged anyone interested to join. Mike Kirkwood and Adrian Gropper have long championed individuals taking more control of access to their medical records. Connection to NHIN Direct here: [1]

Doc reported that the VRM Project "Listen log" is being put into a public radio player. This is a prototype only. Doc reported further work on Emancipay.

Doc is working with lawyer and VRooMer, Renee Lloyd who he reported is applying great original thinking to user gernerated or user located forms for expressing intent. The methods they are working on should make it easier for users to wield a greater level of control, and for companies to simplify their terms of service.

Doc reported that Craig Burton and Kynetx are working on a new data concept where parts of your virtual artifacts -- your digital wallet, etc. are personalized and held by you, even though the data is in a trusted cloud managed by another entity.

Kaliya is gearing up IIW. ProjectVRM will hold a workshop the Sunday before starting at 8:30 AM. Judi Clark is working on locating a space.

Doc reported that a new conference occurred in Washington DC, called "Map the Gap". It is dedicated to having techologists and lawyers engage in dialog, since there is a significant difference in implementation speeds between where tech is and where the laws affecting the societal effects are, hence, the 'gap.