2010 03 25 Steering Committee call notes: Difference between revisions

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Judi mentioned the new NIHN wiki is beginning to deal with VRM issues around medical records and the indvidual as a participant in the movement of medical information about the patients. She encouraged anyone interested to join.
Judi mentioned the new NIHN wiki is beginning to deal with VRM issues around medical records and the indvidual as a participant in the movement of medical information about the patients. She encouraged anyone interested to join.
Mike Kirkwood and Adrian Gropper have long championed individuals taking more control of access to their medical records.
Connection at [http://nhindirect.org/]
Listem log into public radio player
in the cloud; prototype only


Emanicpay work is under way (Doc)
Mike Kirkwood and Adrian Gropper have long championed individuals taking more control of access to their medical records. Dean suggested getting Mike Kirkwood, Adrian Gropper & Mark Scrimshire in the same place, as these are three powerhouses in this arena, all of whom embrace and understand the principles of VRM.
Connection to NHIN Direct here: [http://nhindirect.org/]


Rene origianl thinig of user gernerated  or user located forms of expressing intention, not nec. contractiual....
Doc reported that the VRM Project "Listen log" is being put into a public radio player. This is a prototype only.


make it easier for companies NOT to do ToS
Doc reported further work on Emancipay.


Rene and Craig Burton  are now connected
Doc is working with lawyer and VRooMer, Renee Lloyd who he reported is applying great original thinking to user gernerated or user located forms for expressing intent. The methods they are working on should make it easier for users to wield a greater level of control, and for companies to simplify their terms of service.


what is mine: wallet, glasses, etc. even tho the data is in a trusted cloud somewhere.
Doc reported that Craig Burton and Kynetx are working on a new data concept where parts of your virtual artifacts -- your digital wallet, etc. are personalized and held by you, even though the data is in a trusted cloud managed by another entity.


your pie in the sky
Kaliya is in the process of gearing up IIW.


encompass info sharing, policies, preferences.
Dean suggested planning any VRM activities in advance of IIW, keeping in mind that many VRMers would be atending Judi's all day Sunday meeting.  The suggestion is that ProjectVRM will hold a workshop the Saturday before. Judi Clark is working on locating a space.  


kaliya was at doc's house all weekend
Judi suggested that at IIW we do a daily wrap up of VRM discussions and issues; get those posted and distributed for future work or follow up.


Many efforts are unconnected:
Doc reported that a new conference occurred in Washington DC, called "Map the Gap". It is dedicated to having techologists and lawyers engage in dialog, since there is a significant difference in implementation speeds between where tech is and where the laws affecting the societal effects are, hence, the 'gap'.
* Craig, kynetx
* paul, azigo
* joe, iain, judi, infor sharing
* mike, adrian, health info
there are VRM aspects to all these things
looking at IIW as the unifying next juncture;
Need to loop the efforts together


Day before IIW, Information Sharing Scenarios Development workshop [http://infosharing.eventbrite.com/] on Sunday, 8:30 AM
There was discussion of where the ProjectVRM "web home" will reside if and when it should need to leave the Berkman serverDean offered up use of his 12Dragons server, where the Project VRM.net site presently residesCharles and Dean offered to work with Don Choi, Doc's server and network geek/guru from Berkman, to set that up.
 
Rene working with Joyce, Doc --> what is VRM when it spins off from Berkman -- another school year needed to retain affiliation.
 
Rene working on a doc right now; map the gap conference in DC, ID Legal -- tech and legal move at different rates. the difference is the gap.
Dialog at "Map the Gap" conference in D.C.   
NIH: "individual is zero, no matter how many zeros you have, it's still zero."
 
Look at legal model on the buy and sell side; need to think creatively on the
Info sharing group - Joe A

Latest revision as of 14:41, 26 March 2010

Notes from Project VRM Meeting March 25, 2010 1 - 2 PM EDT

Present: - Doc - Dean - Sean - Iain - Charles - Judi

Dean remarked that tone, quantity, and quality of discussion on the project VRM list is at an all time high

Judi mentioned the new NIHN wiki is beginning to deal with VRM issues around medical records and the indvidual as a participant in the movement of medical information about the patients. She encouraged anyone interested to join.

Mike Kirkwood and Adrian Gropper have long championed individuals taking more control of access to their medical records. Dean suggested getting Mike Kirkwood, Adrian Gropper & Mark Scrimshire in the same place, as these are three powerhouses in this arena, all of whom embrace and understand the principles of VRM.

Connection to NHIN Direct here: [1]

Doc reported that the VRM Project "Listen log" is being put into a public radio player. This is a prototype only.

Doc reported further work on Emancipay.

Doc is working with lawyer and VRooMer, Renee Lloyd who he reported is applying great original thinking to user gernerated or user located forms for expressing intent. The methods they are working on should make it easier for users to wield a greater level of control, and for companies to simplify their terms of service.

Doc reported that Craig Burton and Kynetx are working on a new data concept where parts of your virtual artifacts -- your digital wallet, etc. are personalized and held by you, even though the data is in a trusted cloud managed by another entity.

Kaliya is in the process of gearing up IIW.

Dean suggested planning any VRM activities in advance of IIW, keeping in mind that many VRMers would be atending Judi's all day Sunday meeting. The suggestion is that ProjectVRM will hold a workshop the Saturday before. Judi Clark is working on locating a space.

Judi suggested that at IIW we do a daily wrap up of VRM discussions and issues; get those posted and distributed for future work or follow up.

Doc reported that a new conference occurred in Washington DC, called "Map the Gap". It is dedicated to having techologists and lawyers engage in dialog, since there is a significant difference in implementation speeds between where tech is and where the laws affecting the societal effects are, hence, the 'gap'.

There was discussion of where the ProjectVRM "web home" will reside if and when it should need to leave the Berkman server. Dean offered up use of his 12Dragons server, where the Project VRM.net site presently resides. Charles and Dean offered to work with Don Choi, Doc's server and network geek/guru from Berkman, to set that up.