RE: [projectvrm] Microsoft's Personal Health Care Records

["Drummond Reed" < >]

Doc,

Great post. The key to doing what you say -- "I believe that many of our
health care problems, including the high number of people killed each year
by bad or absent data, can only be solved by a fully decentralized system,
rather than by a centralized one (or ones) run by governments, businesses,
or some combination of both" -- really is open data formats and open data
interchange protocols. Although I believe many on this list already know it,
just to make sure it's clear, that's the entire rationale for the XDI (XRI
Data Interchange) protocol work underway at OASIS.

Since XDI depends on XRI (Extensible Resource Identifier), also a open
standard Technical Committee at OASIS, much of the focus of the past nine
months has been the completion of the second Committee Draft of XRI
Resolution 2.0. Thankfully that's about to go final. That will allow us to
turn our attention back to XDI 1.0.

I'll keep this list informed of progress, both on XDI 1.0 and
implementations already underway, including the Community Dictionary Service
project at Identity Commons (http://cds.idschemas.idcommons.net) aimed at
establishing a "Wikipedia for structured data definitions" that will ensure
the open, community-driven data formats needed to realize your vision.

Anyone interested in participating directly in the XDI Technical Committee
work, let me know. An an open standards organization, OASIS is open to any
person or organization, though it does cost something to be a member
(individual memberships are $300/year). 

=Drummond 

> -----Original Message-----
> From: Doc Searls 
> [mailto:
 ]
> Sent: Monday, October 08, 2007 8:31 PM
> To: Adriana Lukas; 
> 
 
> Cc: 
> 
 ;
>  
> 
 
> Subject: Re: [projectvrm] Microsoft's Personal Health Care Records
> 
> Here are some questions...
> 
> <http://blogs.law.harvard.edu/doc/2007/10/08/health-care-or-health-snare/>
> 
> More soon. Just wanted to get that much out there.
> 
> Doc
> 
> At 4:55 PM +0100 10/8/07, Adriana Lukas wrote:
> >Hey, still lurking, but not less busy for it 'pushing' VRM where I can.
> :)
> >
> >I should be speaking directly to J&J people involved with MS Health
> >Vault today or later this week.
> >
> >I will be relaying the questions about export and ownership mentioned
> >in Joe Andrieu's post. That is my position on it too.
> >
> >The trick is going to make them see these issues in the big picture. I
> >am assuming that as far as JNJ is concerned they are happy with the MS
> >approach to it - after all it is safe, contained and controlled
> >platform. In fact, in this world control means ability to ensure
> >security, at least in their understanding of it.
> >
> >A challenge I think we are facing is explaining to businesses,
> >especially to large corporations, how open and distributed is safer
> >and more desirable.
> >
> >Any additional ideas/suggestions how to get someone from within a
> >company like JNJ that is already involved in MS Health Vault to expand
> >their view? How to get them see why the question of ownership of data
> >and the ability to export them is as important as having a secure
> >place to store them. I suspect that won't be possible without
> >explaining the VRM to them. :)
> >
> >Adriana
> >
> >--
> >The network is always stronger than the node.
> >http://www.mediainfluencer.net
> >http://www.bigblogcompany.net
> >http://www.samizdata.net/blog
> >
> >Background:
> >http://www.mediainfluencer.net/about/
> >
> >Skype: adriana872
> >UK mobile: +44 787 6757129
> >US mobile: +1 732 447 5115
> >
> >
> >
> >On 08/10/2007, 
> >
 
> > 
> ><
 >
> > wrote:
> >>
> >>
> >> In my view it is slap-bang central.
> >>
> >> You could see the VRM space as a series of concentric circles: each
> with its
> >> own technical challenges, business models and opportunities etc.
> >>
> >> At the core is 'my data', which starts with administrative basics such
> as
> >> name, address etc but very quickly spills out across the whole of my
> life.
> >> So it quickly becomes a series of personal databases: my home, my
> money, my
> >> car, my travel arrangements, my health, my job, etc  each of which need
> to
> >> be managed, updated, kept accurate etc if possible without any hassle
> or
> >> effort (!!!)
> >>
> >> The second ring is the decisions I make relating to these life
> departments
> >> (plus life events such as 'moving home', 'getting married', 'getting
> >> divorced', etc). Here the emphasis moves from data gathering, storage,
> >> management, access, protection, security, authentication etc to
> accessing
> >> and using information I need to make the best possible decision -
> including
> >> search, comparison, Q&A etc. At this stage the individual is beginning
> to
> >> interact with 'the market', including trading/sharing information with
> >> potential suppliers.
> >>
> >> The third ring is implementation of these decisions: logistics,
> >> administration, fulfilment, payment etc.
> >>
> >> With each of these three rinigs (1) my data 2) my decisions, and 3)
> >> implementing my decisions) the underlying personal database is a
> critical
> >> component.
> >>
> >> One question is, is Microsoft doing this to 'empower' the individual or
> to
> >> create a new monopoly dependence like its operating systems? But that
> has
> >> got nothing to do with the idea itself.
> >>
> >> Alan
>